August
7

Recently, I came across a stark warning from Anne Johnson-Orliss, former administrator turned founder of Minds Untapped.

As the father of a special needs child with autism, Anne’s cautionary tale is deeply disturbing to me — and should be for all of us parents with special needs kids in school.

She writes:

“For years, I was a public-school administrator, overseeing special education needs with pride and purpose. One thing hasn’t changed: I deeply care about children with disabilities.

School districts in 42 states backbill Medicaid for related services—occupational therapy, physical therapy, speech therapy—and cuts will strip $4 to $6 billion from schools that still must comply with IDEA and ADA.”

These programs aren't optional extras — they’re lifelines for our children.

And with the One Big Beautiful Bill (OBBBA) threat looming over Medicaid cuts of nearly $800 billion, the impact could be devastating — not just to Medicaid, but to public education lifelines and the futures they support.


What’s at Stake

Medicaid funding helps school districts fill gaps left by IDEA, which has never been fully funded.

Local property taxes make up the rest — but they’re already stretched thin from other mandates.

As Anne rightly points out:

Mandating without funding isn’t new — but slicing funding in half in a single bill is unprecedented.

Recent coverage reveals this GOP-led budget plan also slashes eligibility and funding for Medicaid and SNAP, disproportionately affecting children and families.

Add a property tax ban into the mix, and you're looking at a perfect storm:

  • Schools losing millions in therapy service reimbursement

  • Local districts unable to raise tax revenue even as costs rise

  • Families and staff caught in the middle — without recourse, without support


Expert Perspective: The Warning Bells

Dr. Anne Johnson-Orliss, CEO of Minds Untapped, put it bluntly:

“This administration in one Big Bill will gut Medicaid, remove children’s only source of healthcare, and slash public school funding all at the same time.”

She warns of an education caste system, where only those who can pay get help — and the rest fall through the cracks.

That’s not policy — it’s punishment.
(wshu.org +10 | cbcny.org +10 | signalohio.org +10 | nysba.org +1 | sfchronicle.com +1)


Real Families, Real Consequences

I know these families. I am one.

My daughter has autism. She needs speech therapy. She needs consistent services.

If Medicaid funding dries up, it’s our school that picks up the tab — or worse, cuts those services entirely.

Across the country, districts will face hard choices:

  • Freeze hiring

  • Stretch teachers thinner

  • Reduce service hours

  • Or let kids slip

That’s not reform — that’s rollback.


Why This Matters to All of Us

We’re not just talking dollars.

We’re talking:

  • Rights — guaranteed by federal law

  • Equity

  • Futures

Education isn’t a luxury. It’s a right.

Healthcare isn’t a burden. It’s a foundation.

Combating these cuts isn’t just bureaucratic — it’s moral. It’s personal.


What Can We Do?

  1. Raise Awareness
    Share this story with local leaders and ask:
    “How will these cuts affect our kids?”

  2. Connect with Your District
    Talk to administrators. Offer to help them speak up for their students.

  3. Engage Politically
    Contact your representatives. Ask them to oppose unfunded mandates, property tax bans, and cuts to Medicaid.

  4. Join Forces
    Nonprofits like Minds Untapped and local PTAs are already working.
    Lend your voice, time, or expertise.


Our Moment to Choose

Anne Johnson-Orliss has spent decades in boardrooms and classrooms. She’s fought for better tech — and better access — for kids like mine.

We’re at a crossroads:

Do we let one budget bill undo decades of progress?
Or do we push back, speak up, and show what our communities truly believe in?

Because if we don’t, children with disabilities — our children — will pay the price.

More Than a Diagnosis: Why Mental Health Must Be at the Heart of Autism Care

Posted by: admin Tags: There is no tags | Categories: Blog

August
7

For years, the word “autism” has followed my family like a whisper and a shout. It lives in the background noise of every morning routine, and it roars in the quiet moments of uncertainty. But what most people don’t realize—and what I didn’t fully understand at first—is that autism isn’t just about speech delays or social differences. It’s also about mental health.

And that, my friends, is where we’re failing our kids.

A new article from Brown University’s School of Public Health has made something painfully clear: autistic children are facing a mental health crisis that we’re simply not talking about enough. Read it here.

Let me bring that home.

I’m a 66-year-old AI strategist and independent IT expert. But more importantly, I’m a father to a 19-year-old daughter with autism. She’s smart. Beautiful. Fierce. Vulnerable. And like so many autistic kids, her emotional world is deep, complex, and too often misunderstood—even by systems meant to help her.

The Brown study found that young people with autism face staggering rates of depression, anxiety, and suicidal ideation—often much earlier than their neurotypical peers. Why? Because we’re so focused on managing their behavior, we’re forgetting to nurture their emotional wellbeing. And that’s not just a clinical oversight. It’s a moral one.

It’s time to flip the script.

This is where AI should come in—not to replace therapists or caregivers—but to supplement them. To empower them. Imagine AI-powered emotional tracking tools that help nonverbal kids like my daughter express when they’re scared, overstimulated, or sad—without needing the perfect words. Imagine chat-based systems that can screen for anxiety symptoms in autistic teens who have learned to mask their distress until it breaks them.

But let’s be clear: this isn’t about shiny tech. It’s about bringing humanity back into the conversation.

Autism care can’t just be checklists and IEP meetings. It has to include soft places to land—tools and people trained not just to teach behavior but to see the full person beneath it. That means therapists who understand sensory overwhelm. Teachers who notice the signs of internal shutdown. And yes, technology that listens better than any test ever could.

This is deeply personal for me. Every meltdown we’ve survived as a family, every sleepless night, every moment where my daughter looked up and couldn’t say “I’m hurting”—those moments haunt me. And they drive me.

So, what do we do?

We demand more. From schools. From policymakers. From tech developers. From ourselves.

Mental health must be integrated into autism care. Not later. Not if there’s funding. Now.

Let’s teach AI to hear what nonverbal children can’t say. Let’s train teachers to respond to behavior as communication, not defiance. Let’s make space for our kids to be emotionally complex—because they are.

Autistic kids are not just puzzles to solve or systems to optimize. They are souls. And like all of us, their mental health matters.

Enough with the silos. Enough with the shame. Let’s build a world that sees the full picture—and then does something about it.

Because the future of autism care shouldn’t just be functional. It should be whole.

May
7

Navigating the Future of Socialization: The Dangers of 5G and the Importance of In-Person Connections

As a father, husband, autism advocate, and independent contractor in software project management, I've been deeply invested in the future we're shaping for our children, especially in how we choose to connect. I find myself at a crossroads, wrestling with the balance between embracing the convenience of online socialization and safeguarding the traditional in-person experiences that are becoming increasingly rare. The rise of platforms like Discord has made it easier for people, particularly those with autism, to find communities where they can feel understood and accepted. However, I'm growing increasingly concerned about what we might be sacrificing along the way—especially when it comes to the impact of technology on our health.

The Hidden Dangers of 5G Technology

One of the most pressing concerns I have is the rapid expansion of 5G technology. While it's often hailed as a groundbreaking advancement, offering faster internet speeds and more reliable connections, there's a darker side to this technological leap that we must not ignore. Research suggests that the radio waves emitted by 5G could pose significant health risks, particularly when exposure is constant and widespread.

Elon Musk’s ambitious plan to launch over 2,000 satellites to provide global 5G coverage only amplifies these concerns. The idea of being constantly bathed in radio waves, no matter where you are on the planet, is chilling. While the convenience of being able to connect from anywhere is tempting, the potential health risks—ranging from increased cancer risks to neurological effects—are alarming. In the autism community, where many individuals are already more sensitive to environmental factors, this is especially concerning.

Accredited sources like the International Journal of Environmental Research and Public Health have highlighted potential links between long-term exposure to radiofrequency radiation and adverse health effects. While more research is needed, the early findings are enough to make any parent think twice about how much technology we’re willing to embrace without fully understanding the consequences.

The Erosion of In-Person Socialization

Another dimension to this issue is how the increasing reliance on online interactions might be eroding the value of face-to-face connections. For many young people today, the first date is more likely to happen on a screen than in person. While online spaces can offer a refuge for those who find in-person socialization challenging, there's a danger in making these spaces the default rather than a supplement to real-world interactions.

In my own family, I've seen the appeal of platforms like Discord. They offer a space where kids on the spectrum or not can be herself without the pressures that often accompany in-person interactions. However, as much as I appreciate the benefits of these online communities, I worry that they may also be enabling avoidance of the very real and necessary skills that come from in-person socialization.

A Call for Balance

So where do we go from here? I believe the answer lies in balance. We must continue to create safe, inclusive spaces—both online and offline—for individuals with autism and others who may struggle with traditional socialization. However, we should be cautious about leaning too heavily on technology, especially when the potential health risks are still not fully understood.

As an advocate, I see the need for both types of spaces. But as a father, I’m deeply concerned about the long-term effects of a world where in-person interaction becomes a rarity rather than the norm. We must be mindful of the risks that come with over-reliance on technology, particularly when it comes to the uncharted territory of 5G.

Let’s not lose sight of the value of meeting face-to-face, even as we embrace the convenience of online connections. Our health, and the health of our children, may depend on it.

May
7

Introduction

Having an accessible place for those with disabilities ensures that individuals can navigate around a place safely and calmly.  Some examples of accessible items we have are ramps, elevators, braille, wide doors or even as simple as images and pictures being displayed. Most of the general accessible items we have in our general commercial spaces are unfortunately the most cared for in society. Most people forget that public spaces should be comforting and welcoming to everyone. The autism community struggles to feel like they have a safe space for them to relax and be calm like other members of the community. In a crowded loud space with bright lights can cause autistic individuals to experience discomfort, anxiety attacks or meltdowns. The need for sensory friendly places and materials is important for the autism community to feel safe and welcomed understanding and accommodating to their needs can improve their adjustment to discomfort of unfamiliar places, increase the opportunity for more learning to be done more efficiently.Safe places can also increase the chances of autistic kids to socialize and communicate to become and be an active member of their community. Sensory-friendly designs enhance accessibility by reducing sensory overload, promoting comfort, and fostering inclusivity for autistic individuals.

What is autism and how can we Understand Sensory Challenges in Autism?

Autism is a developmental condition that affects an individual’s communication, behavior, and social interactions. It is called a "spectrum" because it manifests differently in each person, with varying degrees of severity and a range of challenges and strengths. People with autism often experience sensory challenges that can vary from person to person. These challenges can be overwhelming and affect their ability to function in everyday life. Understanding these sensory challenges is very important for providing appropriate support. We can start by understanding them by reading different articles and being informed or making sure a public space can be suitable for them.

Key Elements of Sensory-Friendly Design

By considering lighting, noise, colors and textures, layout, furniture ,and smells  we can design spaces that are more inclusive and supportive for people with sensory challenges, making it easier for everyone to feel comfortable and focused.

Conclusion

In conclusion, Sensory-friendly design in public spaces is crucial for creating environments where everyone, especially those with autism, can feel comfortable and included. It helps reduce discomfort and promotes well-being. By making these changes we can work towards a more inclusive and accessible world where everyone can thrive.

April
20

Blog Post 10242024 Harnessing the Power of Robots and AI Apps in Autism Therapy

In the world of autism care, technology is opening doors to support and interventions that are not only innovative but also deeply empathetic. Among the most exciting advances are AI-powered robots and mobile apps that are reshaping how therapy can be delivered. These innovations, from robots like SoftBank's NAO to the Manatee app, are offering new opportunities for autistic individuals, particularly children, to feel seen, heard, and supported in their unique journeys. Let’s explore how these technologies are making a real difference.

Robots as Social Coaches: How AI Makes Therapy Engaging

One of the most promising developments in autism care is the use of robots for therapeutic support. We know that social interactions can often be overwhelming for autistic children, whether due to sensory overload, social expectations, or difficulties in processing emotions. Robots offer a unique space—a place where children can engage without fear of judgment. It’s a space where social cues can be repeated consistently and patience is infinite.

Take NAO, the humanoid robot developed by SoftBank Robotics. Standing about two feet tall, NAO has the ability to change the color of its eyes, move its limbs, and even adjust its voice tone to express emotions. For many children on the spectrum, NAO provides an opportunity to practice recognizing emotions, responding to social cues, and interacting in ways that feel safe. The beauty of NAO lies in its ability to offer therapy without stress—the repetition, the predictability, and the lack of judgment make learning easier and less intimidating.

NAO isn’t just technology—it’s a bridge. It’s helping children find joy in therapy. For many autistic kids, NAO becomes a friend they can hug, a presence they can rely on. This interaction speaks volumes about the power of technology to offer consistency in a world that often feels unpredictable.

AI-Powered Apps: Bringing Therapy Home

While robots like NAO are revolutionizing in-person therapy, AI-powered apps are transforming how we bring support directly into our homes. The Manatee app, developed by a Denver-based startup, is a wonderful example of how technology can meet children where they are, offering support that feels both approachable and convenient.

The Manatee app is designed to guide children through challenging interactions in a way that’s gentle and adaptable. The app offers exercises to help calm the user or work through stressful moments. By analyzing the child’s responses, it can adjust and adapt its approach, making the experience more personal and impactful. With Manatee, children are able to move through their challenges at their own pace, in their own space—a space that feels safe to them. This is incredibly valuable for children who struggle with anxiety or who may not have regular access to traditional therapy.

The real power of these AI apps lies in their emotional accessibility. For many children, talking to a screen or a robot is less daunting than interacting with a human therapist, particularly when emotions are running high. Apps like Manatee are filling an important gap, offering an affordable solution that easily integrates into daily routines—whether at home, at school, or during transitions. It’s about creating opportunities for growth that fit seamlessly into the lives of children and their families.

The Promise of AI and Robotics in Autism Care

The integration of AI-powered robots and mobile apps in autism therapy isn’t just about innovation—it’s about making care more accessible, more engaging, and more emotionally safe for those who need it most. By offering consistent, adaptive, and patient interactions, these technologies have the potential to make therapy more effective, particularly for children who find traditional methods daunting.

However, it’s essential to remember that AI and robotics are not meant to replace human connection—they’re here to enhance it. They act as supplements that can bridge gaps, providing children with new ways to engage with their world while ensuring they receive the support they deserve. For parents and caregivers, these tools can be a lifeline—helping families navigate the complexities of autism care in a way that is flexible and supportive.

The future of autism care is filled with hope. With the continued evolution of AI in healthcare, solutions like NAO and Manatee are breaking down barriers and giving children on the autism spectrum a chance to thrive in a world that can often feel overwhelming. It’s about creating opportunities for these children to unlock their potential, one step at a time.

Final Thoughts

The intersection of AI, robotics, and autism therapy is just the beginning of a transformative journey. As these technologies evolve, they will offer even more ways for children to connect, communicate, and grow. At its core, it’s about giving every child the opportunity to shine—and when AI is used with empathy and thoughtfulness, it becomes a powerful ally in this mission. Let’s continue to embrace these tools not just for their innovation, but for the humanity they bring to autism care.

Protandim

Posted by: admin Tags: | Categories: Blog

April
20

Mitochondrial Health, Oxidative Stress, and Autism: A Parent's Guide to Understanding the Connection

Hello, fellow parents and caregivers. As a father of a child on the autism spectrum, I know firsthand the challenges we face and the constant search for ways to support our children's well-being. Today, we're exploring the potential connection between mitochondrial health, oxidative stress, and autism, and how supplements like LifeVantage Protandim Tri-Synergizer might play a role in supporting overall health.

Understanding the Basics: Mitochondria and Oxidative Stress

Picture mitochondria as tiny energy factories inside our cells, working hard to keep our bodies functioning smoothly. As we age or face health challenges, these factories can become less efficient, which is known as mitochondrial dysfunction.

Oxidative stress happens when there's an imbalance between unstable molecules called free radicals and antioxidants in our bodies. Think of it like a game of tug-of-war, with free radicals pulling on one end and antioxidants on the other. When free radicals start to win, it can lead to cellular damage and contribute to various health issues.

The Autism Connection: What Research Suggests

Studies, like the 2012 systematic review by Rossignol and Frye, have found that autistic children may be more likely to experience mitochondrial dysfunction compared to their neurotypical peers. It's important to understand that while this connection exists, mitochondrial dysfunction is not considered a cause of autism. Instead, it may contribute to some of the challenges faced by autistic individuals.

Supporting Your Child's Health: A Holistic Approach

When it comes to supporting your child's mitochondrial health and reducing oxidative stress, there are several evidence-based approaches to consider:

- Encouraging regular exercise and playtime

- Providing a balanced diet rich in antioxidants (think colorful fruits and veggies!)

- Establishing a consistent sleep routine

- Incorporating stress reduction techniques, like deep breathing or sensory breaks

Some families also explore dietary supplements, such as LifeVantage Protandim Tri-Synergizer. This supplement combines three products designed to support the body's antioxidant production, mitochondrial function, and cellular energy. However, it's crucial to remember that individual results may vary, and the safety and effectiveness of this supplement have not been evaluated by the FDA.

Before considering any new supplement for your child, always consult with their healthcare provider. They can help you determine if the supplement is appropriate and guide you in developing a comprehensive care plan that meets your child's unique needs.

A Personal Journey: Our Experience

In my own journey as a parent, I've explored various ways to support my daughter's health, including trying the LifeVantage Protandim Tri-Synergizer. While we've noticed some positive changes, it's important to remember that what works for one family may not work for another. Every child's experience is unique, and there's no one-size-fits-all solution. In a similar manner, we also have utilized essential oils and supplements from DoTERRA, under a watchful eye, and have found significant results helping to address our child’s autism symptoms.

The Big Picture: Embracing a Supportive Environment

Supporting your child's health is just one piece of the puzzle. Creating a loving, accepting, and inclusive environment is equally important. Surrounding your child with understanding, accommodating their unique needs, and celebrating their strengths can make a world of difference in their overall well-being.

Remember, you're not alone on this journey. Reach out to support groups, connect with other parents, and don't hesitate to lean on trusted resources like the Autism Society (autism-society.org) or the National Autism Association (nationalautismassociation.org).

In conclusion, while exploring the connection between mitochondrial health, oxidative stress, and autism can be valuable, it's just one aspect of supporting your child's well-being. By taking a holistic approach, working closely with healthcare professionals, and fostering a supportive environment, you can help your child thrive and reach their full potential.

Stay curious, stay hopeful, and know that every step you take to support your child matters. We're all in this together! If you would like more information on LifeVantage Protandim products, please DM me.

In full disclosure, the NYC Autism Community Group and the Autism Innovation Community Foundation is an official distributor of Protandim products because it is consistent with our mission to support evidential, holistic autism supports and we would only recommend a product we utilize ourselves and where we have received benefit in our family.

References:

Rossignol, D. A., & Frye, R. E. (2012). Mitochondrial dysfunction in autism spectrum disorders: a systematic review and meta-analysis. Molecular psychiatry, 17(3), 290-314.

Rethinking Autism Diagnosis

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April
20

Rethinking Autism Diagnosis: How AI Challenges Traditional Criteria

The landscape of autism diagnosis is on the brink of transformation. Recent research from McGill University suggests that our current diagnostic criteria may need a significant overhaul. Traditionally, clinicians have relied on manuals like the DSM-5, which emphasize both social communication challenges and behavioral patterns. However, this new study indicates that certain behavioral traits might be more indicative of autism than previously believed. 

Researchers employed artificial intelligence to analyze over 4,200 clinical reports of children in Quebec. Surprisingly, they found that socialization factors—such as emotional reciprocity and non-verbal communication—were not as specific to autism diagnoses. In contrast, behaviors like repetitive movements, intense fixations, and unusual sensory sensitivities showed a stronger correlation. This insight suggests that placing greater emphasis on these behavioral traits could lead to more accurate and timely diagnoses. 

The implications are profound. By refining diagnostic criteria, we can potentially expedite the assessment process, ensuring that individuals receive the support they need without unnecessary delays. As someone deeply committed to assisting professionals in balancing their work and personal lives, I recognize the value of integrating AI into our practices. Leveraging technology not only enhances efficiency but also ensures that we make informed, data-driven decisions. 

Incorporating AI into diagnostic procedures exemplifies how innovation can lead to improved outcomes. As we navigate these advancements, it's crucial to remain open to reevaluating established norms and embracing tools that can enhance our effectiveness. After all, achieving equilibrium between professional responsibilities and personal well-being often requires us to adapt and evolve.

For a detailed exploration of this study, refer to the original article published by McGill University. McGill University

Recovery-11/17event

Posted by: admin Tags: There is no tags | Categories: Event

November
20

The new york comedy festival Autism Jokes

On 11/17

Fee: 25$

Description:

Come join us for the new york comedy festival! We will be parting at 4 and cracking jokes at 6!

Note:

This is a recovery archive of a event file going down. The event past already.. Sorry! -website designer